Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative
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چکیده
منابع مشابه
Paediatric screening for hypercholesterolaemia in Europe.
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Biobanking for Europe
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Antiphospholipid syndrome (APS) is rare in children, and evidence-based guidelines are sparse. Consequently, management is mostly based on observational studies and physician's experience, and treatment regimens differ widely. The Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative was launched to develop diagnostic and management regimens for children and young...
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Methods The survey questionnaires were developed through consensus meetings of the SHARE consortium partners and consultations with experts from across PReS Working Groups. The Surveys have been stratified into 4 levels: Country-wide, Centre-specific, Disease-specific and Personal. Final survey texts were transformed into electronic web-based system hosted by PRINTO and presented to paediatric ...
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ژورنال
عنوان ژورنال: Annals of the Rheumatic Diseases
سال: 2017
ISSN: 0003-4967,1468-2060
DOI: 10.1136/annrheumdis-2017-211904